living with a neurodegenerative disorder (pontocerebellar hypoplasia)
Published 3 years ago • 344K plays • Length 15:51Download video MP4
Download video MP3
Similar videos
-
37:09
living with catastrophic epilepsy (3 brain surgeries and 10,000s of seizures)
-
1:20
living with pontine tegmental cap dysplasia (1 of 30 in the world)
-
13:06
living happily with half a brain (hemispherectomy and schizencephaly)
-
9:53
living with sotos syndrome (a mutated gene)
-
3:17
adopting five children with various disabilities
-
22:04
living with williams and rett syndromes (the only known person with both)
-
15:29
hope for punya (a rare condition and searching for answers)
-
20:07
siblings with fetal alcohol syndrome (an adoption story)
-
13:59
sweet sophia (never underestimate her)
-
12:30
josie's joyful life (one of the world's rarest syndromes)
-
11:19
gabby's great adventure (neonatal progeroid syndrome)
-
29:10
layla's rare life (the only known case ever)
-
11:48
hadley's happy and unique life
-
10:03
living with three disabilities (hydrocephalus, arthrogryposis, crouzon syndrome)
-
14:20
living with edwards syndrome (trisomy 18)
-
10:01
armiah's world (blind and growth deficiency)
-
10:41
living with extra 22nd chromosome (nonverbal friendship)