take the leap! forming a 501(c)(3) & establishing a disease registry to advance your rare community
Published 3 years ago • 322 plays • Length 59:52Download video MP4
Download video MP3
Similar videos
-
4:17
rdca-dap: shortening the timeline for developing new treatments for rare diseases
-
1:02:09
starting a not-for-profit organization: you can do it, we can help!
-
46:12
who's left out? recognizing barriers and building an inclusive community (dei series: part 2 of 3)
-
59:44
advocating for a rare disease advisory council in your state
-
3:50
light up for rare | rare disease day 2021
-
13:30
hemoglobinopathies
-
10:59
rare diseases research: clinical trial for niemann-pick type c
-
7:34:19
human services - new york state budget public hearing
-
46:43
getting involved in clinical research: finding and preparing for clinical trials
-
31:46
nord rare disease lecture for purdue university
-
50:39
all a-board: how to identify and recruit board members for your rare nonprofit
-
4:22:46
integrated assessment of marketing applications and integrated review documentation workshop
-
0:16
join the lls national patient registry
-
42:52
coa for rare diseases resource roll out
-
32:01
drug supply in the time of covid-19
-
1:06:41
rare disease day 2021 | ran florida
-
1:19:33
navigating diversity, equity, and inclusion in rare disease non-profits (dei series: part 1 of 3)
-
40:15
advocacy 101
-
4:31
pamela gavin, coo, national organization for rare disorders at the bio buzz center 2015
-
56:43
how patient nonprofits can help accelerate drug development
-
19:44
cure om patient registry update
-
11:57
501c3 determination letter